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Finding Support

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Create a circle of support

You may feel powerless over what’s happening in your body. It may help to talk with your health care provider about emotions you may be experiencing. It may also be helpful to create a circle of support and surround yourself with people who care about you and can help you cope with your condition.

Your circle of support can include:

  1. Your health care provider or other members of your cancer team
  2. Friends
  3. Family members
  4. A support group
  5. Other people who have cancer

Communicating with your cancer care team

Many different people may be working with you along the way and become part of your cancer care team. To give you the help and support you need, your cancer care team members need to know how you are doing. It’s important that you ask how and when you can reach them between appointments in case you have any questions.

Tips for caregivers: sharing your strength

Caring for someone with cancer is an important responsibility. It takes energy and dedicated effort each day. You may:

  • Provide encouragement and support
  • Help keep other family members informed about what’s going on
  • Help with household chores and cooking meals
  • Take care of medical insurance paperwork and pay bills
  • Help with organizing medicines, going to doctor appointments, or meeting with the cancer care team

Being a care partner requires a lot of energy and can be tiring. You need to take time to care for yourself. Your own needs are important, too. Consider these ideas to help you cope:

  • Spend time with people who love and support you
  • Join a social activity
  • Practice relaxation methods, such as yoga or meditation
  • Eat well-balanced, healthy meals
  • Try to fit in at least 30 minutes of exercise most days of the week. Be sure to talk with your doctor before starting any exercise program
  • At least once a week, set aside some time to do something you enjoy

Support and resources

The following is a list of some organizations that offer information and support for people living with cancer and their care partners. You may find other online resources useful as well, such as patient support groups specific to advanced soft tissue sarcoma. Novartis is neither affiliated with nor endorses any of these organizations and does not control, and is not responsible for, the information they provide. Any information you get from these organizations is not meant to replace your health care provider’s medical advice.

Sarcoma organizations and websites

Sarcoma Alliance
www.sarcomaalliance.org
1-415-381-7236

Sarcoma Foundation of America
www.curesarcoma.org
1-301-253-8687

National Leiomyosarcoma Foundation
www.nlmsf.org
1-303-783-0924

National cancer resources

American Cancer Society
www.cancer.org
1-800-227-2345

National Cancer Institute
www.cancer.gov
1-800-4-CANCER (1-800-422-6237)

Association of Cancer Online Resources
www.acor.org
1-212-226-5525

CancerCare
www.cancercare.org
1-800-813-HOPE (1-800-813-4673)

Mobile and digital tools

Cancer.net Mobile
Available at www.cancer.net/app, this interactive tool helps keep track of questions to ask health care providers, among other features

Lotsa Helping Hands
Available at www.lotsahelpinghands.com, this tool helps with organizing aspects of your care, such as appointments, daily needs, etc.

Caregiver support

Family Caregiver Alliance
www.caregiver.org
1-800-445-8106

CancerCare
www.cancercare.org
1-800-813-HOPE (1-800-813-4673)

Cancer Support Community
www.cancersupportcommunity.org
1-888-793-9355